Please ensure Javascript is enabled for purposes of website accessibility
ORIGINAL PAPER
Diabetes, child care, and performance of family functions
 
More details
Hide details
1
Department of Social Nursing, Warsaw Medical University, Warsaw, Poland
 
 
Submission date: 2016-07-05
 
 
Final revision date: 2017-01-03
 
 
Acceptance date: 2017-02-20
 
 
Publication date: 2017-03-31
 
 
Medical Studies 2017;33(1):17-25
 
KEYWORDS
TOPICS
ABSTRACT
Introduction: Parents caring for a child with diabetes may experience a burden on both a practical and an emotional level.
Aim of the research: Analysis of the correlations between the care burden level and the perceived influence of type 1 diabetes in children on the performance of family functions.
Material and methods: The study included 112 caregivers of children with diabetes. The following inclusion criteria were taken into account: full family, direct caregiver of the child, the child’s age 3–16 years, disease duration of at least 6 months, and no chronic diseases in siblings. The study material was collected using an interview questionnaire and the Caregiver Burden Scale. Correlation analysis was performed using the Spearman correlation coefficient. The significance level was defined as p = 0.05.
Results: A higher burden level of a caregiver in the individual subscales of the CB Scale was associated with a significant decrease in the intensity of performance of the cultural and social function as well as consumption function, the increased amount of time spent with a sick child, and an increase in parental disagreements. The overall burden level differentiated the performance of the religious function. An increase in the burden level on the overall effort subscale was accompanied by lower interest in sex and less frequent sexual intercourse. The higher level of caregiver burden occurs in families where permanent job income has fallen. The differences were shown in the performance of control-socialisation function due to the sense of burden on the environment subscale.
Conclusions: The burden level of a caregiver is important in the perceived influence of the child’s illness on the functioning of the family. Stimulating a caregiver in dealing with the problems that are the consequence of the disease, as well as activating and preparing other family members to participate in the care of a sick child, and financial support may reduce the caregiver burden and thus facilitate the functioning of the family.
REFERENCES (37)
1.
World Health Organization: Definition. Diagnosis and classification of diabetes mellitus and its complications. Report of a WHO consultation. Part 1. WHO Geneva 1999. Available from: whqlibdoc.who.int/.../1999/who_ncd_ncs_99.2.p.
 
2.
American Diabetes Association: Diagnosis and classification of diabetes mellitus. Diabetes Care 2015; 38 (Suppl. 1): S8-16.
 
3.
Zalecenia kliniczne dotyczące postępowania z chorym na cukrzycę 2016. Diabetol Klin 2016; 5 (Supl. A): A1-70.
 
4.
Jarosz-Chobot P, Polanska J, Szadkowska A, Kretowski A, Bandurska-Stankiewicz E, Ciechanowska M, Deja G, Mysliwiec M, Peczynska J, Rutkowska J, Sobel-Maruniak S, Fichna P, Chobot A, Rewers M. Rapid increase in the incidence of type 1 diabetes in Polish children from 1989 to 2004, and predictions for 2010 to 2025. Diabetologia 2011; 54: 508-15.
 
5.
Patterson CC, Dahlԛuist GG, Gyürüs E, Green A, Soltèsz G; the EURODIAB Study Group. Incidence trends for childhood type 1 diabetes in Europe during 1989-2003 and predicted new cases 2005-20: a multicentre prospective registration study. Lancet 2009; 373: 2027-33.
 
6.
International Diabetes Federation. IDF Diabetes Atlas update poster, 7th edn. Brussels, Belgium: International Diabetes Federation, 2015 http://www.diabetesatlas.org/.
 
7.
Bakun M, Szewczyk L. Sposoby funkcjonowania rodziców dzieci chorych na cukrzycę typu 1. Pediatr Endocrinol 2010; 3: 65-74.
 
8.
McClellan CB, Cohen LL. Family functioning in children with chronic illness compared with healthy controls: a critical review. J Pediatr 2007; 150: 221-3.
 
9.
Zegarlicka-Poręba M, Rembierz A, Jarosz-Chabot P. Jakość życia małżeńskiego rodziców dzieci z cukrzycą typu 1 w ocenie własnej. Pediatr Endocrinol Diabetes Metab 2008; 14 Supl. 1: 26 [U-32].
 
10.
Nitka-Siemińska A, Myśliwiec M, Landowski J, Balcerska A, Wolnik W. Zespół wypalenia u rodziców osób chorych na cukrzycę typu 1. Diabet Prakt 2008; 9: 76-81.
 
11.
Coffey JS. Parenting a child with chronic illness: a meta synthesis. Paediatr Nurs 2006; 32: 51-9.
 
12.
Fichna P, Skowrońska B, Stankiewicz W. Leczenie cukrzycy w wieku rozwojowym. Klin Pediatr 2005; 13: 286-95.
 
13.
Gawłowicz K, Krzyżaniak A. Wpływ cukrzycy typu 1 u dziecka na funkcjonowanie rodziny. Probl Hig Epidemiol 2009; 90: 72-77.
 
14.
Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: an overview of concepts and their measures. Gerontologist 1990; 30: 583-94.
 
15.
Sales E. Family burden and quality of life. Qual Life Res 2003; 12 Suppl 1: 33-41.
 
16.
Kirch W. Encyclopedia of Public Health. Springer-Verlag 2008; 99.
 
17.
Elmståhl S, Malmberg B, Annerstendt L. Caregiver’s burden of patients 3 years after stroke assessed by a novel caregiver burden scale. Arch Phys Med Rehabil 1996; 77: 177-82.
 
18.
Jaracz K, Grabowska-Fudala B, Kozubski W. Obciążenie opiekuna po udarze. W kierunku modelu strukturalnego. Neurol Neurochir Pol 2012; 46: 224-32.
 
19.
Malerbi FE, Negrato CA, Gomes MB; Brazilian Type 1 Diabetes Study Group (BrazDiab1SG). Assessment of psychosocial variables by parents of youth with type 1 diabetes mellitus. Diabetol Metab Syndr 2012; 4: 48.
 
20.
Siemiński M, Nitka-Siemińska A, Nyka W. Zespół wypalenia. Forum Medycyny Rodzinnej 2007; 1: 45-9.
 
21.
Lindström C, Aman J, Norberg AL. Parental burnout in relation to sociodemographic, psychosocial and personality factors as well as disease duration and glycaemic control in children with type 1 diabetes mellitus. Acta Paediatr 2011; 100: 1011-7.
 
22.
Skórczyńska M. Przewlekła choroba dziecka w aspekcie realizacji zadań życiowych jednostki i rodziny. In: Dziecko chore. Zagadnienia biopsychiczne i pedagogiczne. Cytowska B, Winczura B (eds). Impuls, Krakow 2007; 39-51.
 
23.
Lindley LC, Mark BA. Children with special health care needs: impact of health care expenditures on family financial burden. J Child Fam Stud 2010; 19: 79-89.
 
24.
Rodrigues N, Patterson JM. Impact of severity of a child’s chronic condition on the functioning of two-parent families. J Pediatr Psychol 2007; 34: 417-26.
 
25.
Seiffge-Krenke I. “Come on, say something, dad!”: communication and coping in fathers of diabetic adolescents. J Pediatr Psychol 2002; 27: 439-50.
 
26.
Waizenhofer RN, Buchanan CM, Jackson-Newsom J. Mothers’ and fathers’ knowledge of adolescents’ daily activities: its sources and its links with adolescent adjustment. J Fam Psychol 2004; 18: 348-60.
 
27.
Hamburg B, Gale A, Inoff GA. Coping with predictable crises of diabetes. Diabet Care 1983; 6: 409-16.
 
28.
Cyranka K, Rutkowski K, Król J, Krok D. Różnice w komunikacji małżeńskiej i postawach rodzicielskich między rodzicami dzieci zdrowych a rodzicami dzieci chorych na cukrzycę typu 1. Psychiatr Pol 2012; 46: 523-38.
 
29.
Sullivan-Bolyai S, Deatrick J, Gruppuso P, Tamborlane W, Grey M. Constant vigilance: mothers’ work parenting young children with type 1 diabetes. J Pediatr Nurs 2003; 18: 21-9.
 
30.
Marshall M, Carter B, Rose K, Brotherton A. Living with type 1 diabetes: perceptions of children and their parents. J Clin Nurs 2009; 18: 1703-10.
 
31.
Leishman JM. Individual and family predictors of the caregiver burden of parents rearing a child with diabetes. Electronic Theses and Dissertations, 2010, p.41,44. Available from: http://scholarsarchive.byu.edu... =3407&context=etd.
 
32.
Streisand R, Mackey ER, Elliot BM, Mednick L, Slaughter IM, Turek J, Austin A. Parental anxiety and depression associated with caring for a child newly diagnosed with type 1 diabetes: opportunities for education and counseling. Pat Educ Counsel 2008; 73: 333-8.
 
33.
Streisand R, Swift E, Wickmark T, Chen R, Holmes CS. Pediatric parenting stress of parents with type 1 diabetes: the role of self-efficacy, responsibility and fear. J Pediatr Psychol 2005; 30: 513-21.
 
34.
Haugstvedt A, Wentzel-Larsen T, Rokne B, Graue M. Perceived family burden and emotional distress: similarities and differences between mothers and fathers of children with type 1 diabetes in a population-based study. Pediatr Diabetes 2011; 12: 107-14.
 
35.
Tsamparli A, Kounenou K. The Greek family system when a child has diabetes mellitus type 1. Acta Paediatrica 2004; 93: 1646-53.
 
36.
Twardowski A. Sytuacja rodzin dzieci niepełnosprawnych. In: Dziecko niepełnosprawne w rodzinie. Obuchowska I (ed.). WSiP, Warsaw 2008; 18-54.
 
37.
Cyranka K. Psychologiczne aspekty funkcjonowania rodziny dziecka chorego na cukrzycę typu 1. Psychoterapia 2012; 160: 51-63.
 
eISSN:2300-6722
ISSN:1899-1874
Journals System - logo
Scroll to top